Oh, oops! We have an IEP meeting today?

I never expected to be in a place where I would completely and utterly forget that we had an IEP meeting approaching.

After all the battles, I had become accustomed to days or weeks of preparation and fretting before each meeting. We would consult with our advocate, we would research, we would pour over . . . → Read More: Oh, oops! We have an IEP meeting today?

The Great Christmas Tree Hunt of 2011.

I’ve written about our yearly adventure to find a Christmas tree each year1. It’s one of our favorite Christmas traditions, one of the few traditional Christmas activities we can enjoy just like everyone else. In many ways, Christmas is a season that seems particularly designed to hurt parents of kids with special needs.

We . . . → Read More: The Great Christmas Tree Hunt of 2011.

I’m just here to help.

Soooo, I have yet another post about the conference…bored yet? It’s that or whine about how much it sucks that Monkey is sick. Again. It’s viral, says the doctor so we just have to wait it out *sigh* Poor kid.

Hmmm, looks like I whined about that anyway…so here is your reward!

On Saturday . . . → Read More: I’m just here to help.

Not all that, a bag of chips and a slice of pumpkin cheesecake.

Yesterday I mentioned that sometimes I start to think that, when it comes to fragile x, “I’m all that, a bag of chips and a slice of pumpkin cheesecake.” Something happened at the conference on Saturday that left me feeling completely humbled though.

Andy Selinger1 mentioned that there was a newly diagnosed family in . . . → Read More: Not all that, a bag of chips and a slice of pumpkin cheesecake.

There is always something to learn.

I’m the first to admit that I don’t know anything everything about fragile x but sometimes I start to slide a little bit towards complacency and think I know enough about this beast we live with and sometimes love1. Honestly, after 5 years and 8 months2 of living with the diagnosis, 4 years and . . . → Read More: There is always something to learn.

Creativity

Not so long ago, just a smidge under two months ago to be precise, Monkey surprised Eric1 and I by developing this new skill…playing with TOYS.

We were so thrilled and after waiting 7 1/2 years I was expecting him to make baby steps in this arena…things like perhaps adding a few additional toys . . . → Read More: Creativity

This is just bragging.

The National Fragile X Foundation released it’s new logo family today. It is a big change and I am loving it!

Here is the bragging part, my husband did the animation/reveal. Please go check it out on the home page:

National Fragile X Foundation

 

It is just as well.

I mentioned in my last post that I had a zombie post1 lined up but two things happened2

My self-righteous anger died after I spewed the venom into mah blawg; and I forgot the password I used to password protect it3.

So, no zombie posts! Which is good…it was très horrible.

The problem is . . . → Read More: It is just as well.