Fragile X LINKS Group of Eastern Massachusetts

Fragile X LINKS Group of Eastern Massachusetts

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A guaranteed motivator.

When I’m struggling emotionally, as I’ve been lately, I often have a hard time being motivated to do anything. Cleaning, laundry, showering…ugh. It’s all just so much damn work and I’d rather just, you know, sit and stare at a wall. Yeah. Or the inside of my eyelids…even better. I’ve found a guaranteed fix . . . → Read More: A guaranteed motivator.

One Day Fragile X Conference in Connecticut

The Fragile X Society of Connecticut is hosting a one day conference again this October!  Marcia Braden, Ph.D. (Colorado Spring, CO) Karen Riley, Ph.D. (University of Denver), Don Bailey, Ph.D. (RTI International, NC), Sharyn Lincoln, M.S., CGC (Children’s Hospital Boston) and Jonathan Picker, MB ChB, Ph.D. (Children’s Hospital Boston) will all be presenting.  See . . . → Read More: One Day Fragile X Conference in Connecticut

I must apologize…

I feel as though I’ve given you all the blog equivalent of “Someone I love went to Detroit and all I got was this lousy t-shirt.”  I can do better than that.  I did actually learn stuff.  I did not spend the entire conference at the bar, I swear!

One of the sessions I attended . . . → Read More: I must apologize…

Apparently this isn’t going to just write itself.

A few of you may have heard that there was this thing in Detroit last week.  It was a chance to learn a lot, drink a lot and laugh even more.  I’m not sure how long it’s going to take for me to process all the information that I tried stuffing into my little . . . → Read More: Apparently this isn’t going to just write itself.

I had no clue!

Before we left home Duhdee asked me if I was going to do a “Rock City Edition” and I said, “Yeah, of course!” I thought I could blog every night!

Clearly I was delusional.  Every morning we get up at 7, we go downstairs to grab coffee/tea/pastries and wander around the various booths from . . . → Read More: I had no clue!

Stuck in the middle.

I’ve such a hard life.  This week has been quite busy and a little stressful because we are currently stuck in the middle of two vacations.  I know, poor, pitiful me.

We had such a nice time while on vacation in the mountains.  None of us really wanted to leave.  The last morning my . . . → Read More: Stuck in the middle.

Fragile X Conference

I wanted to be sure no one missed this.  I don’t think many people go back and read the comments to old posts!

Susan says:

May 25, 2010 at 4:10 pm

As a native Detroiter I am thrilled to welcome all of the FX community to our area. I would like to make a . . . → Read More: Fragile X Conference

Fragile X Conference

This past Saturday the Fragile X Society of Connecticut hosted a conference at the University of Connecticut Health Center.  We left Monkey with my parents in Maine and made the trek down there with high expectations.  It was fantastic!  So fantastic that I can honestly say it was worth having to get . . . → Read More: Fragile X Conference

The Fragile X Conference

So, it occured to me that it was going to take me a long time to get all my notes together and that the end result would be a very long post.  I’ve therefore decided to share some of the tips, resources and information in a series of smaller posts.

Today is Resource No. . . . → Read More: The Fragile X Conference