It’s time to make Eric cry again.

It’s getting a little heavy here. There are a lot of strong emotions and one of my mostĀ favorite coping mechanisms, when I start getting dragged down, is PINTEREST! TheĀ problem is when I start spending time on PINTEREST, I start getting ideas.

If you recall the nightmare that was Caleb’s room redesign then you know, . . . → Read More: It’s time to make Eric cry again.

The Perfect Storm.

No, this isn’t about Sandy. It’s also not about that movie I never did get around to seeing. This is about grief.

A very long time ago, I had another blog. A secret blog. *gasp* I know! Another amazing, inspiring blog and I have kept it from the world? Shocking and selfish. Or, maybe, . . . → Read More: The Perfect Storm.

Nothing to see here.

I used up my very last brain cell yesterday coming up with a plan for C’s weekend story to share. Hurricane cleanup and preparation, fun!

Today we’re hanging out inside where it’s dry, listening to the wind whipping through the trees outside while we wait for Hurricane Sandy to arrive. Caleb always finds ways . . . → Read More: Nothing to see here.

Way too much pressure!

One of the academic areas that Caleb is included is “Writing Workshop.” This is when the kids all spend time…writing. Caleb doesn’t write. His fine motor skills are terrible so the only thing he can write semi-legibly is his name1 and he’s still working on learning words…stringing sentences together isn’t really happening yet. With . . . → Read More: Way too much pressure!

That word.

That word is back in the news. Periodically someone famous lets it slip in public, gets skewered (rightfully) by angry families, friends and self advocates, apologizes and then we the rest of the world moves on until the next time.

We…we don’t get to move on because, while the rest of you folks feel . . . → Read More: That word.

I have an 8 year old boy.

This…this could be the backpack of any young boy…

Normal.

This, however, could not.

Not normal.

I am grateful for the chance to be here, looking at a box of medicine that may or may not change our lives. It’s still a bitter pill to swallow…and I’m not even the one taking . . . → Read More: I have an 8 year old boy.

Oh, the Places You’ll Go!

Oh, the Places You’ll Go! by Dr. Seuss

You will come to a place where the streets are not marked. Some windows are lighted. But mostly they’re darked. A place you could sprain both your elbow and chin! Do you dare to stay out? Do you dare to go in? How much can you . . . → Read More: Oh, the Places You’ll Go!

I really want to be happy.

I want to write a lighthearted, happy post about my little Monkey. An upbeat post about Saturday’s awesome fragile X conference in Connecticut would do in a pinch but…I don’t have either in me. Not today.

Yesterday, I was strong, I was upbeat, I was positive because that’s who I am when Monkey needs . . . → Read More: I really want to be happy.

The bags are packed!

This weekend Caleb and the dogs are going to Maine to spend time with my mom, dad and sister. It does not matter how stressed I may be or how exhausted I may be or even how excited I may be about getting a break…I still hate it. I said good-bye to my little . . . → Read More: The bags are packed!