Fragile X LINKS Group of Eastern Massachusetts
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By Melissa, on January 31st, 2012
I don’t know how else to describe myself these days but to say that I am at loose ends. I’m not very good at grieving, I guess. I expected the tears. I expected to keep being brought up short when my Bubba wasn’t where I expected him to be. I expected the emptiness. I . . . → Read More: At loose ends.
By Melissa, on January 25th, 2012
I call that a good day.
For those who are still unaware, we had to say goodbye to Copper last Friday. Even after everything we had been through with him, even knowing for weeks that our time together was limited, I was still surprised by how quickly it all happened at the end. At . . . → Read More: I laughed more than I cried today.
By Melissa, on January 3rd, 2012
 No money fairy is going to swoop down and deposit $1,000,000 in my account. No job fairy is going to flit through and drop a raise, promotion or career change in my lap. FXS fairies are not going to swarm my friends and family and revise what FXS has changed or return what was . . . → Read More: Welcome to 2012! Nothing will change.
By Melissa, on December 23rd, 2011
By Melissa, on December 21st, 2011
 On the first Wednesday night of the month I was out to dinner with some of my most favorite ladies in the world and one of them had brought up this “elf thing.” Most of us had not heard of this phenomena. She described it in great detail and not terribly positively either, I . . . → Read More: Saved by an Elf.
By Melissa, on December 20th, 2011
 Once upon a time there was a young girl living far, far away from home. She was lonely and unemployed, depending on another for food and shelter and companionship. That’s an awful lot of pressure to put on one single person, especially one who was often away from home on deployments. She was so . . . → Read More: Besties (or, A Photographic Examination of True Love)
By Melissa, on December 16th, 2011
 We visited with the oncologist today and it seems that there’s more going on here than we had been told.
Copper’s white blood count really impressed her, she hasn’t ever seen it get so high before. He is an overachiever there. His liver and kidney values are a little wonky but she thinks he . . . → Read More: An update on Copper.
By Melissa, on December 14th, 2011
 These days when people ask me how I’m doing, I tell them, “I’m fine.” That’s what we tell people who don’t really want to know and most people, they don’t want to know. They have enough going on in their own lives, they have their own hurts and worries…they don’t really want to be . . . → Read More: I’m not fine but I’ll be OK.
By Melissa, on December 1st, 2011
If you have had the pleasure of meeting us you know this is, perhaps, an1 understatement. Eric is the one who keeps the house running smoothly and I’m the one who comes up with all these great “ideas” that send the household into chaos. Basically, I’ve got an awesome wife2.
As if being spoiled . . . → Read More: My husband deserves a medal.
By Melissa, on September 21st, 2011
Today is September 21 and I just figured out why I’ve been in a rotten, low down, hide under the covers mood for the last two weeks. No one has ever accused me of being overly bright.
I don’t want to remember that day. I tried really hard to avoid all the anniversary coverage . . . → Read More: I am so with it.
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