Two weeks ago, a notice was sent home in Caleb’s backpack. The notice went out to all of the children at his school and informed them of a series of field trips and activities that would be taking place during vacation week. Parents were asked to return the permission slip and a check to . . . → Read More: The same story, told twice.
Attending the Family Leadership Series has been life changing, just as my friend Patricia had said. I have, for most of Caleb’s life, defined myself as a special needs parent. I have framed all of my goals around his special needs and his special education rights. My child’s needs aren’t all special, nor are . . . → Read More: Have you met my child? He’s a human being.
Every morning before school Eric and Caleb do their morning shower routine. Caleb likes to wait until the last possible second before he will actually get into the shower. He will lay on the floor or pretend to use the toilet usually, and….the speed at which he gets undressed…I have no idea how Eric . . . → Read More: Captain Sneakypants.
If you are seeing a lot of people wearing blue or turning blue on social media (and they are not discussing Obamacare) it is most likely due to the fact that today is World Autism Awareness Day!
This morning I was walking up the stairs at Caleb’s school behind a father and son when . . . → Read More: Today is World Autism Awareness Day!
Somehow March is over and I’ve still not shared much about that trip to DC. Part of it is that whole black seed of misery thing and part of it is that I have told the stories so many times it feels like everyone in this state and maybe a few others have heard . . . → Read More: About that trip to DC
Two nights ago I had this dream, I was standing at the top of a mountain. It was a barren, granite mountain top like those you often see in Maine. Suddenly the earth shifted under my feet and the rocks slid in a jagged, irregular path down the slope. I was left standing on . . . → Read More: Rockslide.
I wrote a blog, “Time for a new story?” last November on a topic that has become a bit of an obsession. Language. You will probably not find many parents of children with special needs who aren’t aware that language matters. Just look at the support the “R-word Campaign” has built.
Every time someone . . . → Read More: I am a work in progress.
At the last leadership series session, one of the presenters began the day by walking us through a bit of meditation to get us in the right frame of mind for a day of hard work (through play, it was awesome.) I’m going to shorten this by a great deal but you’ll get the . . . → Read More: Glitter
I’ve been avoiding this topic for yeeeeaaaars because I’m fairly sure I’m about to upset more than a few of my fragile X friends. I hate conflict. I like my friends. So this post is really, really hard to write. My palms are sweaty, in fact, but I want to share my thoughts on . . . → Read More: My child is not a puppet.