The sun is shining, leaves are appearing on the trees after a long, long winter, the birds are singing and none of that matters because it’s Monday. I’m not normally a total Monday hater but I woke up this morning absolutely drained. It’s completely understandable since I spent my entire night with auto . . . → Read More: My brain frightens me.
Last Friday, Caleb and I were on our way to Canton, IL…to Holly’s house. We were a day late for the start of the visit due to severe flooding in that area but we were there in plenty of time for the really big event…the 10th Annual Walk for Fragile X Syndrome and 3rd . . . → Read More: We’re too close to stop here!
I’ve written several blogs already today and deleted every one of them. Blogs filled with fear, hurt and anger…oh, yes…the anger.
But, today, I needed something to lift me up above those feelings. I found this photo I took a couple of weeks ago and never got around to sharing.
Today I needed . . . → Read More: Today.
A local business has offered to host a fundraising event for the National Fragile X Foundation! Eric and I will be going (YAY for grown up time!) and we’d LOVE to see some other families and friends there too. 25% of the proceeds will benefit the NFXF!
Boston View @ Kingston Station 6pm-8pm . . . → Read More: Fun and Fundraising!
Image from: Shut Up About Your Perfect KidFind more funny IEP goals at Funny IEP Goals: Laugh Your Behind Off in 15 out of 15 Opportunities
I don’t know how it’s possible but it is, once again, time for Caleb’s 3 year re-determination for special education.
For anyone who’s not familiar with the . . . → Read More: The dreaded three year re-determination.
When I go on and on about the changes we’ve seen in Caleb since starting the STX 209…this is a perfect illustration of what I’m talking about.
Yesterday, after a long day of school and work, we got home. We followed our normal (read: insane) getting home routine which involves everyone getting upstairs, getting . . . → Read More: Now this is what I’m talking about!
Yesterday, I put my fragile X carrier anxiety on full display for you1 and once again I’m reminded why my life has been 100,000,000,000 times better since I’ve become involved in the fragile X community. If you didn’t read the comments, you should go back and do that.
To sum up…this was . . . → Read More: Once again, I am reminded of what it means to have a community.
I’ve been having an argument with myself for several weeks. The circus is back in town and Caleb wants to go. He asks to go to the circus several times a week and I keep telling him, “Not today.”
He no longer remembers his first trip to the circus, how could he…just look at . . . → Read More: I’m not always that brave.
As much as I love reading, I’ve always been pretty *meh* when it comes to poetry. There are a few I love but mostly…well…I’ve really only read poetry when it has been assigned for school…well except for that “Welcome to Holland” poem which was assigned by my genes. (Srsly, it’s required reading for “Welcome . . . → Read More: A poem.
A few people were having trouble reading the article I linked to yesterday, attached is a .pdf version that will hopefully work for those of you who couldn’t read it online.
Hoping for Too Much